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You may also feel pain, pressure or discomfort anywhere between the lower abdomen and the urethral area. Studies show half of patients can’t work full-time and 70 per cent have disturbed sleep. The clues are in the symptoms and the lack of any abnormalities in urine tests (with standard cystitis, a urine test can be given to check for the bacteria that caused the infection).In that respect, the condition has much in common with fibromyalgia and irritable bowel syndrome. The trouble started four years ago after a prolapse operation — I caught a bug while in hospital after having a catheter.I was told I would just have to live with it, but it seems to be getting worse.

As with those conditions, while it is emphatically not a psychological disorder, it can be worsened by stress or depression.

The first step is education and support from a doctor who understands the nature of the complaint and who is committed to helping you by trying different treatments, informed by your own concerns and expectations.